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Monday, March 04, 2013

The Unknown Reason

Sometimes, it's quite difficult for me to explain on Jaja's Juvenile Idiopathic Arthritis (JIA) to people. Normally people will ask what, why, when and how did she gets arthritis in the first place. When I told them she had it at 2 years old and the reason is unknown, most people will give me 'that' stare, that doubt stare, that 'yeke' stare. It's hard to believe but that's the truthful answer. Even if you ask a rheumatologist, you'll get the same answer. 'Idiopathic' means unknown cause. Jaja was born healthy and fine. Then at 2 years old she had her first sign of arthritis, the swollen knee. But she was misdiagnosed, her condition worsen and she suffered for almost one year until we found the correct doctor for her. Syukur to Allah.

Arthritis in kids is different from arthritis in elder people. Jaja arthritis is because of her autoimmune. Yes, you normally heard this in House tv series. Actually this autoimmune is the 'unknown cause'. Autoimmune is when the immune system makes a mistake and attacks the body's own tissue or organs. In Jaja's case it was her joints. I would say Jaja is lucky because she has Polyarticular Arthritis, Rheumatoid Factor Negative. Some kids have more severe arthritis condition than her. Some of you may wonder whether she may had it during my pregnancy or when she was born. The answer would be 'No'. Again, Jaja was totally fine when she was born until suddenly this autoimmune kicks in. Until now, the medical world is still searching for the answer- what triggers autoimmune?

Another thing I need to share is JIA has no cure. Yeah.. you heard that right. JIA can only be managed by medication. I will usually get 'that' kinda stare again when I said this. Hence I will write about this in my next post. For now, let this video do the talking.





2 comments:

Ainur68 said...

Tak semua di dalam dunia ni boleh di explain, kannn...
Maksud firman Allah: Dan ketahuilah, bahawa hartamu dan anak-anakmu itu hanyalah sebagai cubaan dan sesungguhnya di sisi Allah lah pahala yang besar. (Al Anfal:28)

isha said...

Masing2 punya bahagian...lain orang lain pula dugaan dan ujiannya...semua ada sebab tersendiri..

Allah saja yg tahu...